Deaf-accessibility for spoonies: lessons from touring Eve and Mary Are Having Coffee while chronically ill

This article presents lessons from touring a show on pain with limited resources and in chronic pain. In 2014, I toured solo deaf-accessible poetry/art show Eve and Mary Are Having Coffee in various forms in the UK, Austria, and India. As an Indonesian woman with then-extreme chronic pain and fatigue, herein are lessons learned from harsh difficulties and successes in making a show accessible to some disability cultures, whilst struggling with one’s own. Examined are intersections of accessibility, and framing of disabled performers from non-Western backgrounds in Western contexts. Audiovisual media from the tour is included.